Exclusive Service
Multidisciplinary Support for Motor Neurone Disease
Our Approach
At The London Neurocognitive Clinic, our approach to Motor Neurone Disease support is delivered through a coordinated multidisciplinary team. Depending on the individual’s presentation and goals, this may include Neuro-physiotherapy, Occupational Therapy, Speech and Language Therapy, Neuropsychology and other relevant clinical input. The process begins with a detailed discussion about the person’s diagnosis, current symptoms, daily routine, home circumstances, communication needs and priorities. Family members or carers may also contribute, with the individual’s consent, as they can provide valuable information about changes occurring outside the clinical setting.The team then brings these findings together to produce a coordinated plan. This helps avoid fragmented recommendations and allows potential future needs to be considered before they become urgent
How can the team help me prepare for changes due to MND without taking away my independence?
The multidisciplinary team may discuss equipment, mobility support, communication methods, home adaptations, assistance with personal care and ways of reducing effort during daily activities. Recommendations can be introduced gradually and reviewed as needs change. In some cases, equipment may be discussed before it is urgently required so that the individual has time to consider, trial and become familiar with it.
The person’s independence and choices remain central throughout this process. The team will consider what the individual wants to continue doing, which forms of support they are comfortable accepting and how family members or carers can assist without taking over unnecessarily.
What happens when communication or swallowing becomes more difficult?
Changes in speech or swallowing can occur in MND, but the pattern and timing vary between individuals. These discussions are approached sensitively and at a pace that allows the individual and family to understand the available options and make informed choices.
How can the team support mobility, comfort and everyday care?
The Neurophysiotherapist may assess how the individual moves and identify ways to maintain safe mobility without causing unnecessary fatigue or strain.
The Occupational Therapist may explore dressing, bathing, toileting, eating, accessing different parts of the home and completing valued activities. Equipment or adaptations may be recommended to reduce effort and promote safety. The therapist may also advise family members or carers on handling, routines and ways of providing assistance that protect everyone involved.
As MND progresses, regular review can help ensure that equipment and support continue to match the person’s changing needs.
Questions our clients ask
Frequently asked questions
You may have lots of questions and that’s understandable. We have provided some answers below to frequently asked questions but if you’re still unsure about something do get in contact with us.
Will I need to see every member of the multidisciplinary team?
Not necessarily. The clinicians involved will depend on the individual’s current symptoms, priorities and existing services. Some people may initially require input from only one or two disciplines, while others may benefit from a broader assessment.
The team will aim to involve the right professionals at the right time rather than arranging appointments that are not currently useful. Additional disciplines can be introduced if new needs emerge.
How often will my needs be reviewed?
There is no single review schedule that is appropriate for everyone. Reviews may be arranged at planned intervals or sooner when there is a meaningful change in mobility, communication, swallowing, breathing, cognition, personal care or the level of support required.
Does the service also support family members and carers?
Yes. MND can have a substantial practical and emotional effect on relatives and carers as well as on the person with the diagnosis. With the individual’s consent, family members may be included in relevant discussions, assessments and planning.
The team may provide guidance on communication, transfers, positioning, personal care, equipment and responding to changing symptoms. Neuropsychological support may also help families understand emotional, cognitive or behavioural changes and adjust to evolving roles and responsibilities.
Have Questions?
If you have any questions about Acceptance and Commitment Therapy (ACT) or would like to find out whether it could benefit you or someone you care for, please don’t hesitate to get in touch. We’re here to help.